Analysis: Trump order jeopardizes cost effective, life-changing cure for sickle cell

We are lucky to live in a time when creative scientists are developing life-changing new cures for debilitating genetic diseases. These breakthrough treatments are as important as penicillin or insulin were in their time. Unfortunately, they are also very expensive. To help pay for them, federal Medicaid officials created an opportunity to help states afford gene therapy cures for sickle cell disease. Earlier this month, DSS announced that they will apply for that help. But buried in the avalanche of President Trump’s Executive Orders last week was one that puts access to that life-changing treatment at risk. The latest news from DC suggests that the program will continue despite the Executive Order, so we remain hopeful. Read more