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Connecticut Health Policy Project
  Improving Connecticut's Health Through Information

CT Health Policy Project

Privacy Resolution
Adopted, Board of Directors
January 15, 2002

The Connecticut Health Policy Project has been and will continue to be fully committed to jealously guarding the privacy of all individuals and organizations it serves. All staff, consultants, volunteers, students, board members and others associated with the Connecticut Health Policy Project will honor this commitment. All personally identifiable information collected through research, inquiry, or other means will be held in the strictest confidence. Personally identifiable research and other materials will be destroyed as soon as possible.

Policy on Research Ethics
Adopted, Board of Directors
September 12, 2007

Scientific Integrity All staff and volunteers shall maintain exemplary standards of intellectual honesty in formulating, conducting and presenting research, as well as in reviewing research and research proposals for either the CTHPP or other organizations. All instances of research misconduct will be investigated, and if substantiated, will result in appropriate sanctions. Research misconduct includes fabrication, falsification or plagiarism in performing, reviewing or reporting research.

Any person involved in a research project, including development, execution, analysis and reporting results, is responsible for maintaining scientific integrity. Any person at CTHPP must report any instance of misconduct, their own or another’s. Staff and volunteers are free to report misconduct to the Executive Director and/or any Board member.

All research materials remain the property of the CTHPP. No staff may remove any research data or reporting without permission.

All information about research subjects will be kept confidential unless the subject or their legal guardian has consented. Consent includes signed consent forms for every instance of information release as well as an on-going process . The process includes interactive, two-way, culturally-appropriate conversations about the intented use of the information, means and consequences of disclosure, and any limits the subject chooses to set on the research or disclosure. Consent must be voluntary. Subjects are free to withdraw their consent, in whole or in part, at any time before publication. It is never appropriate for any staff or volunteers to pressure subjects to participate in CTHPP research in any way. Consent is not complete unless the subject understands the research project and the role they will play; nor is it complete until all parties understand any limits on consent set by the subject.

Conflicts of interest by staff, volunteers, Board members involved in research or review activities or the CTHPP as an organization must be disclosed in all communications, written or oral, regarding those activities. Conflicts of interest include all relationships, personal and financial, that may potentially have a bearing on the research findings or be affected by the research or review.

June 23, 2010 Public Comment submitted to the CT Health Information Technology and Exchange